Study Design

Qualitative study

Objective

To explore the perspectives of preclinical spinal cord researchers and clinicians involved in the treatment of spinal cord injury on patient and public involvement (PPI) in preclinical research.

Setting

Preclinical spinal cord injury research.

Methods

Semi-structured interviews were conducted online to collect data that was analysed thematically.

Findings

Twenty-two participants (11 clinicians and 11 preclinical researchers) were interviewed. Participants recognised the value of PPI in improving the relevance of preclinical spinal cord research and providing a source of motivation for lab-based research. The perceived distance between preclinical research and the day-to-day experiences of PPI contributors was identified as a major barrier. Inclusive practices and the highly networked and motivated community of people affected by spinal cord injury were noted as facilitators. Building strong partnerships was considered essential for successful PPI.

Conclusions

While PPI has traditionally been more commonly associated with clinical research, participants identified the potential benefits of PPI in preclinical spinal cord research to provide context and improve research relevance and impact. Preclinical researchers should explore how PPI can be incorporated in their work.