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bibliographicCitation Taruscio D, Gainotti S, Mollo E, Vittozzi L, Bianchi F, Ensini M, Posada M. The current situation and needs of rare disease registries in Europe. Public Health Genomics. 2013;16(6):288–98. doi: 10.1159/000355934. PMID: 24503589.
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date 2013
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title The Current Situation and Needs of Rare Disease Registries in Europe
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